Caring for the Mind While Caring for the Kidneys
Kidney disease affects more than the physical body.
A diagnosis may also affect:
- Emotional health
- Relationships
- Independence
- Employment
- Finances
- Sleep
- Confidence
- Family responsibilities
- Plans for the future
- A person’s sense of identity
Patients may experience fear, sadness, anger, frustration, anxiety, grief, loneliness, or uncertainty.
These emotions can occur after diagnosis, while kidney function is declining, during dialysis, while waiting for a transplant, after transplant surgery, during rejection treatment, or after a transplanted kidney fails.
Having difficult emotions does not mean that a person is weak, ungrateful, or failing.
Mental and emotional health are important parts of kidney care.
Emotional Reactions to a Kidney-Disease Diagnosis
Being diagnosed with kidney disease can be overwhelming.
A patient may wonder:
- How serious is this?
- Will my kidneys continue to decline?
- Will I need dialysis?
- Will I qualify for a transplant?
- Can I continue working?
- How will I support my family?
- What will happen to my independence?
- Will I be able to travel?
- Will I be able to eat normally?
- Will my relationships change?
- Am I going to die?
Some people immediately begin researching and planning.
Others may feel numb, confused, angry, or unable to process the information.
There is no single correct emotional response.
People need time, clear information, and support.
The Difference Between Emotional Distress and Mental Illness
Feeling sad, worried, or frustrated after a major diagnosis does not automatically mean someone has a mental health disorder.
Temporary emotional distress may improve as the person:
- Learn more about the condition
- Adjusts to treatment
- Receives support
- Develops a routine
- Gets answers to important questions
- Begins feeling more in control
However, emotional symptoms may require professional attention when they:
- Continue for several weeks
- Become more intense
- Interfere with daily life
- Affect treatment attendance
- Affect medication use
- Damage relationships
- Prevent sleep
- Cause severe hopelessness
- Include thoughts of death or self-harm
A healthcare or mental-health professional can help determine what type of support is needed.
Depression and Kidney Disease
Depression is more than having a difficult day or temporarily feeling sad.
Possible signs may include:
- Persistent sadness
- Loss of interest or pleasure
- Hopelessness
- Feelings of worthlessness
- Excessive guilt
- Irritability
- Social withdrawal
- Difficulty concentrating
- Changes in sleep
- Changes in appetite
- Low motivation
- Thoughts of death
- Thoughts of self-harm
Depression is common among people living with chronic illness and can make it harder to manage kidney disease.
Depression is treatable.
Treatment may include:
- Counseling
- Psychotherapy
- Medication
- Support groups
- Peer support
- Lifestyle support
- Treatment of contributing medical problems
- A combination of approaches
Kidney Disease and Depression Can Share Symptoms
Kidney disease, dialysis, anemia, medication effects, poor sleep, and depression can cause some of the same symptoms.
Overlapping symptoms may include:
- Fatigue
- Weakness
- Difficulty concentrating
- Sleep problems
- Poor appetite
- Reduced interest in activities
- Low energy
- Changes in movement
- Reduced sexual interest
Because these symptoms may have several causes, they should not automatically be blamed on depression or kidney disease.
The healthcare team may need to evaluate:
- Anemia
- Dialysis adequacy
- Blood pressure
- Medication side effects
- Thyroid function
- Sleep apnea
- Infection
- Electrolyte levels
- Nutrition
- Heart disease
- Depression
- Anxiety
- Other medical conditions
Anxiety and Kidney Disease
Anxiety may involve persistent fear, worry, tension, or a sense that something bad is about to happen.
Possible signs may include:
- Racing thoughts
- Constant worry
- Difficulty relaxing
- Restlessness
- Irritability
- Trouble sleeping
- Muscle tension
- Rapid heartbeat
- Sweating
- Shaking
- Shortness of breath
- Stomach discomfort
- Difficulty concentrating
- Avoiding appointments or treatments
Patients may worry about:
- Laboratory results
- Declining kidney function
- Dialysis access
- Needles
- Fluid overload
- Hospitalization
- Transplant eligibility
- A transplant call
- Rejection
- Infection
- Financial problems
- Death
Anxiety should be discussed with the healthcare team, especially when it interferes with treatment or everyday life.
Panic Attacks
A panic attack is a sudden period of intense fear or discomfort.
Symptoms may include:
- Racing heartbeat
- Chest discomfort
- Shortness of breath
- Shaking
- Sweating
- Dizziness
- Numbness or tingling
- Feeling detached
- Fear of losing control
- Fear of dying
These symptoms may resemble serious medical problems.
People with kidney or heart disease should not assume that new chest pain, breathing difficulty, faintness, or an abnormal heartbeat is only anxiety.
Seek urgent medical evaluation when symptoms could represent a physical emergency.
Grief and Loss
Kidney disease may create many forms of loss.
A person may grieve the loss of:
- Previous health
- Physical strength
- Energy
- Employment
- Financial stability
- Favorite foods
- Freedom with fluids
- Spontaneous travel
- Independence
- Sexual confidence
- Family roles
- A dialysis access
- A transplanted kidney
- Plans for the future
Grief is not limited to the death of a loved one.
People can grieve major changes in health and identity.
Grief may come in waves and may include:
- Sadness
- Anger
- Denial
- Bargaining
- Guilt
- Fear
- Relief
- Acceptance
- Renewed sadness
There is no fixed order or timetable.
Anger and Frustration
People living with kidney disease may feel angry about:
- The diagnosis
- Dialysis
- Treatment schedules
- Food and fluid restrictions
- Medication side effects
- Medical errors
- Long waiting periods
- Insurance problems
- Loss of independence
- Feeling misunderstood
- Dependence on other people
- A failed transplant
- Repeated hospitalizations
Anger is an understandable emotion.
However, uncontrolled anger can damage relationships, interfere with care, and increase emotional distress.
Healthier ways to manage anger may include:
- Naming the specific problem
- Taking time before responding
- Speaking with a counselor
- Exercising when medically appropriate
- Writing thoughts down
- Asking for clearer information
- Joining a support group
- Using relaxation techniques
- Requesting help with practical problems
Fear of Kidney Failure
A person with chronic kidney disease may live with uncertainty for months or years.
The person may worry about whether kidney function will:
- Remain stable
- Decline slowly
- Decline suddenly
- Require dialysis
- Affect transplant eligibility
- Lead to hospitalization
Accurate information can reduce some fear.
Patients may benefit from asking:
- What stage of kidney disease do I have?
- Is my kidney function stable?
- How quickly has it changed?
- What can I do to protect the remaining function?
- Which symptoms should I report?
- When would dialysis education begin?
- When should transplant evaluation begin?
- What choices may be available?
Planning does not mean giving up hope.
Planning can help restore a sense of control.
Emotional Challenges of Dialysis
Dialysis can preserve life, but treatment may also be physically and emotionally demanding.
Patients may struggle with:
- Loss of time
- Treatment fatigue
- Needles
- Access problems
- Cramping
- Low blood pressure
- Weakness
- Transportation
- Food and fluid restrictions
- Limited travel
- Employment changes
- Financial stress
- Dependence on a machine
- Fear of complications
- Feeling different from other people
Patients may also feel pressured to appear grateful because treatment keeps them alive.
A person can appreciate dialysis and still dislike the burdens that come with it.
Both feelings can be true.
Dialysis Burnout
Dialysis burnout may develop when the demands of treatment feel unmanageable.
Possible signs may include:
- Dreading every treatment
- Frequently arriving late
- Asking to end treatment early
- Skipping treatments
- Ignoring fluid or medication instructions
- Feeling emotionally numb
- Becoming increasingly angry
- Saying treatment is no longer worth it
- Withdrawing from staff or family
- Losing hope
Burnout should be addressed directly and without shame.
The patient may need:
- Medical evaluation
- Better symptom control
- Schedule adjustments
- Transportation assistance
- Social work support
- Mental-health treatment
- Peer support
- A review of treatment options
- Help with work or family responsibilities
Skipping or shortening dialysis can become medically dangerous. The patient should speak with the dialysis team before making treatment changes.
Needle Fear and Procedure Anxiety
Some patients experience severe fear before:
- Dialysis needles
- Blood draws
- Biopsies
- Catheter procedures
- Surgery
- Imaging tests
- Hospital visits
This fear may cause:
- Shaking
- Sweating
- Nausea
- Crying
- Panic
- Avoidance
- Missed treatments
- Difficulty sleeping before appointments
Helpful strategies may include:
- Telling the healthcare team
- Requesting a clear step-by-step explanation
- Using prescribed numbing medication
- Practicing slow breathing
- Looking away during the procedure
- Listening to music
- Using guided imagery
- Working with a therapist
- Developing a consistent routine
- Asking whether a support person may attend
Procedure anxiety should be taken seriously.
Emotional Challenges While Waiting for a Transplant
Waiting for a kidney transplant can create a cycle of hope and disappointment.
Patients may experience:
- Fear of missing the call
- Anxiety whenever the phone rings
- Worry about becoming too sick
- Frustration about waiting time
- Guilt about needing a donor
- Concern about antibodies
- Uncertainty about compatibility
- Fear of surgery
- Fear that the transplant will not work
- Disappointment after a canceled transplant
- Concern about finances and recovery
A patient may feel hopeful one day and discouraged the next.
This emotional movement is normal during a long and uncertain process.
When a Transplant Call Is Canceled
A transplant call may not result in surgery.
The kidney may be declining because:
- The organ is not medically suitable
- The crossmatch is unacceptable
- The donor information changes
- Another recipient has higher priority
- The patient has an infection
- A new medical concern is found
- The surgical team determines that proceeding is unsafe
A canceled transplant may cause:
- Shock
- Sadness
- Anger
- Grief
- Emotional exhaustion
- Fear that another call will never come
- Fear of becoming hopeful again
Patients should be allowed to grieve the lost opportunity even though the decision may have protected their safety.
Fear Before Transplant Surgery
People may experience fear even when they have waited years for a transplant.
They may worry about:
- Dying during surgery
- Pain
- The kidney is not working
- Delayed graft function
- Rejection
- Infection
- Medication side effects
- Losing the transplant
- Returning to dialysis
- Disappointing the donor
- Not feeling as happy as expected
Fear does not mean the person does not want the transplant.
It means the person understands that transplantation carries both hope and risk.
Emotional Adjustment After Transplant
A successful transplant can bring relief and freedom, but emotional adjustment may take time.
Recipients may experience:
- Happiness
- Gratitude
- Anxiety
- Fear of rejection
- Fear of infection
- Medication stress
- Sleep changes
- Mood changes
- Body-image concerns
- Financial pressure
- Difficulty returning to work
- Guilt toward the donor
- Fear of every laboratory result
Some recipients expect to feel completely happy after surgery and become confused when they also feel worried, sad, or emotionally exhausted.
These mixed emotions are not unusual.
Fear of Rejection
Some recipients become highly anxious about every symptom or laboratory result.
They may worry that:
- A headache means rejection
- Fatigue means the kidney is failing
- A creatinine change means the transplant is lost
- Missing one appointment will cause failure
- Every infection will damage the kidney
Recipients should learn:
- Which symptoms require a call
- How laboratory trends are interpreted
- How rejection is evaluated
- What medication timing is critical
- Who to contact after hours
Clear instructions can reduce uncertainty.
Survivor Guilt and Donor-Related Emotions
Transplant recipients may feel guilt because:
- A deceased donor died
- A living donor underwent surgery
- Another patient is still waiting
- The recipient’s recovery is difficult
- The recipient does not feel as joyful as expected
- The transplant develops complications
The recipient did not cause the donor’s death.
Accepting a donated organ does not require a person to feel happy every moment.
Recipients may honor the gift by:
- Taking medications
- Attending appointments
- Protecting their health
- Living according to their values
- Expressing gratitude in a personally meaningful way
Counseling may help when guilt becomes overwhelming.
When a Transplant Fails
Transplant failure can create profound grief.
A person may feel that they have lost:
- The transplanted kidney
- Freedom from dialysis
- Confidence in the future
- Physical strength
- Trust in the body
- Hope for long-term stability
The person may also experience:
- Anger
- Shame
- Fear
- Depression
- Anxiety
- Guilt
- Trauma
- Fear of another transplant
- Concern about antibodies
- Exhaustion from returning to dialysis
Transplant failure is a medical outcome, not a moral failure.
Patients should not automatically be blamed for rejection or loss of the kidney.
Trauma Related to Medical Care
Some patients experience medical trauma after:
- Intensive-care treatment
- Emergency surgery
- Severe bleeding
- Repeated hospitalizations
- Painful procedures
- Difficult dialysis treatments
- Transplant rejection
- Serious infection
- Near-death experiences
- Feeling ignored or powerless
- Unexpected complications
Possible trauma symptoms may include:
- Nightmares
- Flashbacks
- Avoiding medical settings
- Panic before appointments
- Feeling constantly on guard
- Emotional numbness
- Difficulty trusting healthcare professionals
- Strong reactions to sounds, smells, or equipment
A trauma-informed mental-health professional may help patients process these experiences.
Body Image and Self-Esteem
Kidney disease and treatment may change how a person feels about their body.
Concerns may involve:
- Dialysis fistulas or grafts
- Catheters
- Surgical scars
- Swelling
- Weight changes
- Hair changes
- Skin changes
- Medication effects
- Loss of muscle
- Amputation
- Changes in sexual function
- A transplant incision
These changes can affect confidence, clothing choices, relationships, and intimacy.
Patients deserve respectful support and accurate information about what can and cannot be treated.
Intimacy, Relationships, and Sexual Health
Kidney disease may affect:
- Sexual desire
- Energy
- Hormones
- Fertility
- Erectile function
- Vaginal comfort
- Body image
- Emotional closeness
- Confidence
Medications, diabetes, blood-vessel disease, depression, fatigue, and relationship stress may also contribute.
Patients may feel embarrassed to discuss sexual health, but it is part of overall well-being.
A healthcare professional may evaluate medical causes and discuss safe treatment options.
Family and Relationship Stress
Kidney disease can change family roles.
A spouse may become a caregiver.
An adult child may begin managing appointments.
The patient may no longer be able to work or perform familiar responsibilities.
Conflict may develop around:
- Food
- Fluid
- Medications
- Dialysis attendance
- Transportation
- Money
- Household work
- Transplant decisions
- Independence
- Caregiver fatigue
Helpful communication includes:
- Speaking without blame
- Asking what support is wanted
- Setting boundaries
- Dividing responsibilities
- Attending counseling
- Allowing the patient to retain independence
- Recognizing caregiver stress
Loneliness and Social Isolation
People with kidney disease may become isolated because of:
- Treatment schedules
- Fatigue
- Physical limitations
- Transportation problems
- Fear of infection
- Food and fluid restrictions
- Loss of employment
- Friends not understanding
- Embarrassment about treatment
- Depression
- Anxiety
Isolation may worsen emotional distress.
Connection may come through:
- Family
- Friends
- Faith communities
- Patient-support groups
- Dialysis peers
- Transplant groups
- Community programs
- Online communities
- Volunteer activities
- Counseling
Support from people who understand kidney disease can help someone feel less alone.
Employment, Financial Stress, and Identity
Work provides more than income.
It may also provide:
- Identity
- Routine
- Social connection
- Confidence
- Purpose
- Independence
Kidney disease may force a person to:
- Reduce hours
- Change jobs
- Take medical leave
- Apply for disability benefits
- Stop working
- Retire earlier than expected
This can create grief, fear, shame, or loss of purpose.
A social worker, vocational counselor, benefits specialist, or legal aid organization may help the patient understand the available options.
Financial Anxiety
Patients may worry about:
- Insurance premiums
- Medication costs
- Dialysis transportation
- Hospital bills
- Transplant expenses
- Time away from work
- Housing
- Food
- Utilities
- Caregiver income loss
Financial problems can intensify depression and anxiety.
Patients should ask for help early from:
- Dialysis social workers
- Transplant financial coordinators
- Hospital social workers
- Insurance case managers
- Medication-assistance programs
- Transportation programs
- Community organizations
- Qualified benefits counselors
Loss of Independence
Needing help can be emotionally difficult.
A patient may need assistance with:
- Transportation
- Walking
- Bathing
- Meals
- Medications
- Appointments
- Finances
- Household tasks
Support should preserve as much independence as safely possible.
Family members and caregivers should ask:
- What can the patient still do?
- Which tasks require help?
- What equipment might increase independence?
- Would physical or occupational therapy help?
- Is the patient being included in decisions?
Sleep and Emotional Health
Poor sleep may worsen:
- Irritability
- Depression
- Anxiety
- Memory
- Concentration
- Blood pressure
- Blood glucose
- Fatigue
- Pain tolerance
Sleep problems may be related to:
- Stress
- Restless legs
- Itching
- Sleep apnea
- Fluid overload
- Pain
- Medications
- Dialysis schedules
- Depression
- Anxiety
Report persistent sleep problems to the healthcare team.
Do not assume that every sleep problem is purely emotional.
Healthy Coping Strategies
Healthy coping does not remove every problem.
It can help a person manage difficult emotions and maintain a sense of control.
Helpful strategies may include:
- Speaking with someone trustworthy
- Counseling
- Support groups
- Prayer or spiritual care
- Journaling
- Music
- Art
- Reading
- Gentle exercise
- Time outdoors
- Meditation
- Slow breathing
- Maintaining routines
- Spending time with loved ones
- Setting small goals
- Resting without guilt
- Participating in meaningful activities
The best coping strategy is one that is safe, realistic, and personally meaningful.
Grounding During Anxiety
Grounding techniques may help a person reconnect with the present moment.
One method is to identify:
- Five things you can see
- Four things you can feel
- Three things you can hear
- Two things you can smell
- One thing you can taste
Another method is slow breathing:
- Breathe in gently.
- Pause briefly.
- Breathe out slowly.
- Relax the shoulders.
- Repeat without forcing the breath.
These techniques may help with emotional distress, but they do not replace emergency medical care for chest pain, severe breathing difficulty, fainting, or any other possible medical emergency.
Journaling and Symptom Tracking
Writing may help a person organize thoughts and identify patterns.
A journal may include:
- Emotions
- Symptoms
- Questions
- Laboratory concerns
- Medication effects
- Sleep
- Treatment experiences
- Accomplishments
- Sources of gratitude
- Topics for counseling
Tracking should provide clarity, not increase anxiety.
A person who becomes obsessed with repeatedly checking symptoms or results may need support managing health-related anxiety.
Peer Support
Peer support allows patients to speak with people who have lived through similar experiences.
Peer support may help with:
- Feeling understood
- Preparing for dialysis
- Adjusting to a transplant
- Coping with rejection
- Returning to dialysis
- Understanding practical challenges
- Reducing isolation
- Developing hope
Peer support should complement—not replace—professional medical and mental-health care.
Another patient’s experience may be meaningful, but it may not predict what will happen to someone else.
Support Groups
Support groups may be:
- In person
- Online
- Led by a professional
- Led by trained peers
- Focused on dialysis
- Focused on transplant
- Focused on caregivers
- Focused on grief
- Focused on chronic illness
A healthy support group should encourage:
- Respect
- Privacy
- Accurate information
- Personal choice
- Professional care when needed
Be cautious of groups that encourage patients to stop treatment, reject medical advice, purchase unproven products, or distrust every healthcare professional.
Spiritual and Faith-Based Support
Faith and spirituality may provide:
- Hope
- Meaning
- Community
- Comfort
- A way to process grief
- Support during uncertainty
Some people may also experience spiritual distress and ask:
- Why is this happening?
- Am I being punished?
- Why has healing not occurred?
- What does my life mean now?
A trusted spiritual leader, chaplain, counselor, or faith community may help.
Spiritual support should respect the patient’s beliefs and should not pressure the patient to reject necessary medical or mental-health treatment.
When Professional Counseling May Help
Consider professional support when a person experiences:
- Persistent sadness
- Severe anxiety
- Panic attacks
- Difficulty coping with dialysis
- Fear of procedures
- Medical trauma
- Relationship conflict
- Grief after transplant failure
- Caregiver burnout
- Social isolation
- Sleep problems related to distress
- Loss of interest
- Difficulty following treatment
- Thoughts about death
- Thoughts of self-harm
Types of professionals may include:
- Psychologists
- Licensed mental-health counselors
- Clinical social workers
- Psychiatrists
- Marriage and family therapists
- Trauma specialists
- Addiction professionals
- Grief counselors
Mental-Health Medication and Kidney Disease
Some people benefit from medication for depression, anxiety, sleep, or another mental health condition.
Kidney disease may affect how certain medications are:
- Absorbed
- Processed
- Removed from the body
- Dosed
- Combined with other medicines
The prescriber should know about:
- Kidney function
- Dialysis
- Transplant status
- Other medications
- Heart-rhythm problems
- Blood pressure
- Falls
- Previous side effects
Do not begin, stop, or change a mental-health medication without guidance.
Stopping some medications suddenly may cause withdrawal symptoms or worsening mental health symptoms.
Substance Use and Unhealthy Coping
Some people attempt to manage pain, stress, anxiety, or depression through:
- Alcohol
- Misused prescription medication
- Illegal drugs
- Cannabis products
- Excessive sleeping pills
- Gambling
- Compulsive shopping
- Overeating
- Isolation
These coping methods may worsen:
- Kidney health
- Heart health
- Medication safety
- Treatment attendance
- Financial problems
- Relationships
- Transplant eligibility
- Emotional health
People deserve confidential, nonjudgmental support for substance-use concerns.
Treatment Fatigue Is Not the Same as Giving Up
A person may say:
- “I’m tired of dialysis.”
- “I can’t keep doing this.”
- “I hate taking all these medications.”
- “I’m tired of being sick.”
- “I don’t want another appointment.”
These statements should be taken seriously, but they do not always mean the person wants to die.
They may mean the person needs:
- Better symptom management
- Rest
- Emotional support
- Treatment education
- Schedule changes
- Transportation help
- Pain treatment
- Social work assistance
- A mental-health evaluation
- A discussion about personal goals
Ask calm, direct questions rather than ignoring the statement.
Recognizing a Mental-Health Crisis
A mental-health crisis may involve:
- Thoughts of suicide
- A suicide plan
- Self-harm
- Severe hopelessness
- Extreme agitation
- Hallucinations
- Severe confusion
- Violent behavior
- Inability to care for basic needs
- Dangerous substance use
- Refusal of essential treatment because of an immediate desire to die
Warning signs may include:
- Talking about wanting to die
- Saying others would be better off without them
- Giving away possessions
- Saying goodbye unexpectedly
- Searching for ways to cause self-harm
- Gathering medications or weapons
- Sudden withdrawal
- Reckless behavior
- A sudden unexplained calm after severe distress
Take these signs seriously.
Ask Directly About Suicide
Asking someone whether they are thinking about suicide does not place the idea in their mind.
A calm question may be:
“Are you thinking about hurting yourself or ending your life?”
When the answer is yes:
- Stay with the person.
- Listen without judgment.
- Do not promise secrecy.
- Remove access to immediate dangers when it is safe to do so.
- Contact emergency or crisis support.
- Follow instructions from trained professionals.
Do not leave a person alone during an immediate crisis.
Immediate Crisis Support
In the United States, call or text 988 to reach the Suicide & Crisis Lifeline.
Call 911 or go to the nearest emergency department when:
- There is immediate danger
- A suicide attempt has occurred
- The person has a weapon or other lethal means
- The person cannot remain safe
- There is severe confusion or violent behavior
- A life-threatening medical emergency may also be occurring
Patients outside the United States should use the emergency or crisis services available in their location.
Supporting Someone in Emotional Distress
Helpful responses may include:
- “I’m glad you told me.”
- “You do not have to face this alone.”
- “I’m listening.”
- “Let’s contact someone who can help.”
- “Your feelings matter.”
- “We can take this one step at a time.”
Avoid saying:
- “Just be positive.”
- “You have nothing to be depressed about.”
- “Other people have it worse.”
- “You should be grateful to be alive.”
- “You are being selfish.”
- “You just need more faith.”
- “Stop thinking that way.”
Listening and connecting the person with help are more useful than arguing with their feelings.
Supporting Children and Teenagers
Children and teenagers with kidney disease may struggle with:
- Feeling different
- Missing school
- Body-image concerns
- Treatment fatigue
- Fear of needles
- Bullying
- Isolation
- Worry about the future
- Dependence on parents
- Difficulty transitioning to adult care
Parents and caregivers should watch for:
- Withdrawal
- Falling grades
- Sleep changes
- Anger
- Loss of interest
- Severe anxiety
- Refusal of treatment
- Self-harm
- Statements about death
Children and teenagers should receive developmentally appropriate mental health care.
Caregiver Emotional Wellness
Caregivers may experience:
- Exhaustion
- Anxiety
- Depression
- Anger
- Guilt
- Resentment
- Financial stress
- Sleep problems
- Social isolation
- Fear of the patient dying
- Fear of making a mistake
Caregivers need support too.
Helpful resources may include:
- Respite care
- Counseling
- Support groups
- Family assistance
- Social work services
- Faith communities
- Shared caregiving schedules
- Time for medical appointments
- Emergency backup plans
Supporting the caregiver also supports the patient.
Creating an Emotional-Wellness Plan
An emotional-wellness plan may include:
- People to contact
- The healthcare team’s phone number
- A counselor or therapist
- A support group
- Crisis numbers
- Relaxation strategies
- Meaningful activities
- Sleep routines
- Safe exercise
- Spiritual support
- Transportation resources
- A plan for difficult treatment days
- A plan for transplant-related stress
- A list of warning signs
Keep the plan somewhere accessible.
Review it when circumstances change.
Questions to Ask the Healthcare Team
Consider asking:
- Could my symptoms be caused by depression, kidney disease, or both?
- Could my medications affect my mood or sleep?
- Can you refer me to a mental-health professional?
- Is counseling available through the dialysis or transplant center?
- Are there kidney-disease support groups?
- Are there peer mentors?
- Which mental-health medications are safest with my kidney function?
- Does dialysis affect medication timing?
- What should I do during a mental-health crisis?
- Who can help with financial or transportation stress?
- How can my family support me without taking away my independence?
- Are there resources for my caregiver?
- Could sleep apnea, anemia, pain, or another medical problem be affecting my mood?
Explore Mental Health and Emotional Wellness Resources
The pages assigned underneath this category may include:
- Understanding Depression and Kidney Disease
- Understanding Anxiety and Kidney Disease
- Coping With a New Kidney-Disease Diagnosis
- Emotional Wellness During Dialysis
- Recognizing Dialysis Burnout
- Managing Needle Fear and Procedure Anxiety
- Emotional Wellness While Waiting for a Transplant
- Coping With a Canceled Transplant Call
- Emotional Adjustment After Kidney Transplant
- Fear of Kidney Rejection
- Coping With Transplant Failure
- Grief, Loss, and Kidney Disease
- Medical Trauma and Kidney Care
- Body Image, Intimacy, and Kidney Disease
- Supporting Children and Teenagers With Kidney Disease
- Caregiver Stress and Emotional Wellness
- Finding Peer Support and Support Groups
- Creating a Mental-Health Crisis Plan
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Emotional Wellness Does Not Mean Being Positive All the Time
Emotional wellness does not require pretending that kidney disease is easy.
It means having permission to:
- Tell the truth about the difficult days
- Ask for help
- Feel grief
- Experience hope
- Set boundaries
- Rest
- Receive treatment
- Maintain relationships
- Find meaning
- Continue living beyond the diagnosis
Hope and hardship can coexist.
A person can be grateful for treatment and still feel exhausted.
A person can want a transplant and still fear surgery.
A person can love family members and still feel frustrated.
A person can have strong faith and still need professional mental health care.
You Are More Than Kidney Disease
Kidney disease may affect many parts of life, but it does not define the entire person.
Patients remain:
- Parents
- Partners
- Friends
- Professionals
- Students
- Artists
- Leaders
- Volunteers
- Neighbors
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Treatment is part of life, but life should not be reduced only to treatments, laboratory results, medications, and appointments.
Marshall Kidney Foundation encourages patients, families, caregivers, dialysis patients, transplant candidates, and transplant recipients to care for their emotional health with the same seriousness they give to physical health.
No one should have to suffer in silence.
Medical and Mental-Health Disclaimer
This information is provided for general educational and informational purposes only. It is not medical advice, psychiatric advice, psychological treatment, counseling, diagnosis, crisis intervention, or emergency care.
Emotional symptoms may be caused or worsened by kidney disease, anemia, dialysis, medication effects, infection, sleep disorders, heart disease, electrolyte abnormalities, substance use, depression, anxiety, trauma, or other medical and mental-health conditions.
Only qualified healthcare and mental health professionals can evaluate individual symptoms, make a diagnosis, and recommend treatment.
Do not begin, stop, reduce, increase, or change prescription medications, mental-health medications, sleep medications, dialysis treatments, transplant medications, or other care without instructions from the responsible healthcare professional.
New chest pain, severe breathing difficulty, fainting, severe confusion, weakness, or an abnormal heartbeat should not automatically be blamed on anxiety. Seek urgent medical evaluation when symptoms could represent a physical emergency.
In the United States, call or text 988 for the Suicide & Crisis Lifeline when someone needs immediate emotional or suicide-crisis support.
Call 911 or seek emergency medical care when there is immediate danger, a suicide attempt, severe breathing difficulty, chest pain, severe confusion, uncontrolled bleeding, blue or gray lips, violent behavior, or any rapidly worsening or life-threatening condition.
Do not leave someone alone when there is an immediate risk of self-harm or suicide.
Marshall Kidney Foundation does not provide mental health diagnoses, psychotherapy, psychiatric medication management, suicide assessments, crisis intervention, medical treatment, or emergency services.
Learn more from a trusted medical source: National Kidney Foundation – Mental Health and Kidney Disease
